PANDAS Network advocates for children and families affected by Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections—an often misunderstood and underdiagnosed condition. By raising awareness, promoting research, and offering support, the organization brings visibility and hope to those navigating this difficult journey.

StoryQ partnered with PANDAS Network to conduct a longitudinal study, recording a series of interviews with children and their families over time. These sessions provided a safe space for participants to share their challenges and victories, creating a rich archive of lived experiences. The narratives offer researchers and advocates invaluable insight into how the condition affects development, education, and family life.

The impact is twofold: families feel heard and validated, while the broader medical and advocacy community gains first-hand accounts that can drive better understanding, diagnosis, and treatment. These stories put a human face on a complex medical issue—transforming statistics into lived realities.